Chances Are

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February 6, 2024

Have you ever had that feeling when you just know that something good or bad is about to happen? That intuitive hunch of someone or something whispering in your ear….”hold on, it’s going to get bumpy” or “hold on, it’s about to get exciting.”     I’d venture to say that we’ve all had these intuitive hits at one time or another. It’s a reality of the human experience.

I’ve had a couple of experiences like this in my life, a premonition where I just knew the outcome of an event that was just about to happen. The first time that I can remember this feeling was when I was quite young. There was a carnival hosted by our town’s Lions Club and my siblings and I were each given a couple of dollar’s worth of tickets that we could spend on whatever games of chance the carnival had to offer. Knowing how much a dollar meant, I walked the floor searching for where to place my bets, tickets clutched tightly in my hand. I felt drawn to the roulette wheel and stood to watch how this game of luck and chance was played. Feeling like I understood the rules, I traded two of my tickets for a red paddle with a white number painted on both sides. I wish I could remember the number on that paddle but the surety escapes me. After the roulette wheel was spun, I had the experience of standing outside of myself. I watched as the roulette wheel spun around and around and I just knew that it would stop on my number. I felt knowing in a place that was calm, confident and very sure, as if it had already happened. This place had no time or space or age and yet if felt very much like me. 

The wheel landed on my paddle number and I had a choice of prizes. I picked a large beautiful plastic appaloosa horse. He (I knew it was a he) was prancing and majestic and I loved this horse for years, even though at some point his front leg broke and his shiny coating became scratched and faded. The adventures we would go on in my mind were wondrous and he became more than a toy, he was my friend who accompanied me on imaginary rides through far off lands, my friendly reminder that there is a place where knowingness resides and chance deems you worthy of taking a chance. My friend was eventually replaced by vinyl records, hair brushes, bobby pins and a diary, relegated to the toy box for future grandkids to enjoy. Eventually, I heard that he was discarded, his broken leg deemed a potential safety hazard.

The second time I remember this kind of experience happening I was again at a Lion’s Club event while visiting my parents as an adult and I won a chocolate cake. This time it was like “Hey! Remember me?” Again, I just knew my number would be called. Chance had once again appeared in my life and I was reacquainted with that profound sense of knowingness. I need to add that there have been other experiences mainly related to others or in conjunction with others. I think that most of us have had those moments when we thought about someone and then they called or we knew who was on the phone before we answered (obviously pre caller ID because we’re talking synchronicities here). When it came to my twenty-six years as a massage therapist and healer, I could often pick up on the energies surrounding someone else but these experiences were different, very different. They didn’t have the ‘this is for YOU, Peggy’ message engraved on a bright orange sticky note calmly existing in a space of serene certainty.

I’ve shared before that when I received my cancer diagnosis it felt like a cosmic sledgehammer had just sucker punched me from out of left field without any heads up. My knowingness seemed to have failed me, leaving me in the dark without an emotional roadmap. I truly believed that something as serious as stage four cancer could never sneak up on me. I had been doing my work of healing the deep dark places inside for many years and believed that I had an affinity for knowing the unknown. 

Without a road map and emotionally devastated, I had to rely on the people chance placed in my path. I began learning how to trust someone else’s knowingness which freed me up to begin looking at deeply buried fears and committing to living life (no matter how much I had left) on my terms. It can be terrifying when uncovering those fears. The worst part is just before the dirt comes off, right before light illuminates the totality of what’s been buried. I find it amazing that the fear of what has been buried is often much worse than the reality. I began by looking death in the face and asking ‘who are you and why am I afraid of you?’ For that matter, ‘who am I?’ My motto has been ‘I don’t want to leave before I’ve completed what I came here to complete.’ My prayer and what I know will happen is that I will know when that time has come… it’s just not today and probably not tomorrow or the next day because after twenty-eight days on treatment line number eight, we know that it’s working. 

Last week I had another brain MRI for radiation treatment planning. I also had the mold for my thermoplastic radiation mask done along with the CT simulation scan for SRS (stereotactic radiation surgery) which was to take place in 10-14 days. The trifecta was a follow-up Chest/Abdomen/Pelvis CT scan. The next day a call came in from one of the radiation oncology docs and within that split second before I answered my phone my old friend knowingness made a reappearance: “I’m baaack!” I knew Dr. Nasr would be sharing that after reviewing my scans, the consensus of my oncology team was to wait on SRS as the new treatment was working extremely well on the brain metastasis and the stable areas in my body remained stable to a bit better. 

Hello my old friend…and welcome.

I had an appointment with Dr. Patil this morning and the smile on his face was priceless when he walked into the room. He’s not only a gem of a human being, he’s brilliant and compassionate and a maverick in his chosen field. What I recognize in him that resonates with me is his willingness and ability to act using the knowledge he has and the inspiration he receives … and his being a musician which is the icing on the cake in my book. He was the one who suggested that taking a chance on Mobocertinib was worth pursuing once Enhertu failed. Mobo worked  for nineteen months, a good run when it comes to advanced lung cancer. He also was the one to suggest that Tagrisso might be worth a shot and made the necessary calls. Both times he looked at me and said, “I don’t know if this will work but there’s a chance that you could get a good response.” Then he waited to hear my decision for I get final say. Trust is imperative in a doctor patient relationship and he’s well aware of what I’ve experienced the past seven years and seven months. There is also honesty on both our parts as well as respect for the knowns and unknowns of this disease. I asked to see the MRI and CT images and the differences after twenty-eight days was nothing short of incredible. We will scan again in three months.

Knowingness takes many roads as it makes its way to our conscious awareness. Taking chances requires a change in course, red pill-blue pill,  choosing which road less traveled we will take into the unknown. Choices walk hand in hand with chances. As I shared, I truly believe that I will know when it’s my time. It might be within a split second or it might be, ‘I’m not doing this anymore. I’m ready for the next adventure.’ 

For an adventure it will surely be. I know this.

New Year – New News – New Plans

January 9, 2024

Did you see the fireworks? Did you feel the energy shift from one year to the next? Did you say goodbye to 2023 with gratitude or regret? Did you welcome the New Year with optimism or pessimism? Are you ready?

Ready for what? I’ve been gazing through the looking glass seeing a familiar world that is somehow, once again, turned inside out. 

There are many changes that culminated for me at the end of 2023. After spending hours on the phone over multiple days followed by three hours waiting in line at my local Social Security office, I am now officially a Medicare recipient! Turning sixty-five at one time seemed like an event that would take place in a distant future that I would somehow be better prepared for. While on the phone listening to irritating music and repeated messages telling me that I could always “go to the website” I wanted to yell at someone…anyone…so that I didn’t have to feel the emotions boiling up inside of me. I found my frustration morphing into anger at the unfairness that aging can at times seem to inflict upon us. All said and done, everything fell into right time and place and I re-committed to focusing my attention on living life to the best of my fluctuating abilities, whatever that looks like, grateful that I made it to sixty-five.

Big change number two – after over thirty years, I also am no longer a Kaiser Permanente member. As of January 1, I began receiving my care at the University of Colorado Cancer Center under the expert care of Dr. Tejas Patil who was my oncologist during my clinical trial on Enhertu. I am in excellent hands and I am comfortable with the decisions I have made. Embracing the unknown, as every cancer patient knows well, can take a toll on our mental and physical well being. Living with a cancer diagnosis has opened my awareness to the possibilities of what could and can be. Learning to look forward with awe to what is yet to be discovered and who I will meet along the way continues to be enlightening as well as fulfilling. I look forward to taking these next steps with my new team at UC Cancer Center.

Compounding the timing for this switch was a second brain MRI on November 27 confirming the cancer has metastasized to my brain. Life changing, yes, but it can be dealt with. I have come face to face with similar challenges in the past. Dr. Patil gave a referral to the amazing Dr. Sana Kamara, radiation oncologist and professor at UC, and a plan is being developed. I will be getting more scans in the next few weeks and we will go from there. Right now we know that the brain lesions are all sub-centimeter and hopefully can be addressed with SRS (Stereotactic Radiosurgery).

Another challenge has been that the drug I have been receiving for the past nineteen months is being discontinued by the drug company. This has been a shocking blow to those in the EGFR Exon20/HER2 community as a potential line of treatment will no longer be available. The drug company has promised that those who are currently taking Mobocertinib and doing well will have access through compassionate use for as long as needed. The good news is that there are new drugs in the clinical trial pipeline which will hopefully fill the newly created gaps in treatment options for this lung cancer sub-group, yet another example of living with the unknown.

Where do I fall in this scenario? I am now taking a chemo drug that has better known efficacy for passing through the blood brain barrier (BBB). We will continue PET/CT scans to determine how the new treatment is working and monitor available clinical trials that I might qualify for if/when I need other options. I find that resiliency is once again called for. I will see Dr. Patil next week and we will update plans. In the meantime, I want to thank my friends from all over the cancer community, research, pharma, patients and advocates who have offered advice, suggestions and overall support as I meet another obstacle. I am inspired by you and grateful for you.

So 2023 has ended with a BANG! All things considered, I think there is reason for hope. Seven and a half years ago, statistics said that I wouldn’t be here today, but medicine and magic are working beautifully! 

My best wishes for you and yours in the New Year!

“Pay No Attention To The Man Behind The Curtain…”

January 14, 2019


the silent voice of the wizard whispers in my ear as I’m lying on my back, naked from the waist up, arms over my head, unable to move with a metal plate on my diaphragm. I’m trying desperately to not hyperventilate. There are cameras above me and I know someone is watching. The name Varian is imprinted on the space age machine hovering over me and I close my eyes and wait for ‘it’ to happen. 

Goodness, this sounds like a nightmare or a science fiction novel yet to be written. Instead, it’s my experience while getting SBRT to a cancerous nodule threatening to wake up in my lung. 

Other than having a metal plate locked into place on my diaphragm to ‘normalize’ my breathing this hasn’t been as bad as it sounds. Why the metal plate? I was told I was a very good Yogic breather – deep inhalations followed by long exhales. One would think this was a good thing but in this case, not a plus.

The staff is great. My doc is great. The medical physicist I’m told is great but I haven’t met him/her yet so I’ll take their word for it. The techs positioning me on the table are superbly considerate, professional and friendly, clearly explaining what they are doing and what will be happening. It took a week after getting 4D scans to come up with this treatment plan.  A tremendous amount of thought went in to mapping out the trajectory and how to give just the right amount of radiation to just the right areas while doing everything possible to avoid important things like nerves and bones and arteries.  So far, this treatment has been pain free and side effect free, everything that I was told it would be.

Jim and I will return on Monday, Wednesday and Friday this week for the final three SBRT treatments. When will I know if this has worked? Possibly not for six months. My next scan in two-three months will more than likely show an uptake in SUV activity because of inflammation caused by the radiation so the following scan will be a better indicator.

When I look back on the past two and a half years, I think I’ve done pretty well in confronting my fear, seeing it’s face and acknowledging what can be gained and/or lost. But, every time a new treatment arises, I must once again go back to the well and find more faith, more hope, and more strength. With help I find it, I always find it, but DAMN this is a crazy ride. 

While not very original this was a moment for me… I got my very first tattoos! I asked for something exotic with color, flowers and feathers but I was only allowed four tiny black dots for reference. Permanent reminders of a hopeful future. Too bad my insurance doesn’t cover body art. These tiny black dots are the beginnings of a new chapter and I think the completed picture will be quite lovely.

The awesome Kirsten and Ally with ‘Varian’ in the back